About CIDP Treatment Navigator
Helping CIDP patients become better-informed advocates for themselves
Medical disclaimer: CIDP Treatment Navigator is an educational tool only. It cannot diagnose you, interpret your test results, or tell you which treatment to take. All information should be discussed with your neurologist before acting on it.
What is this tool?
CIDP Treatment Navigator is a free AI-powered educational assistant for people living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and their caregivers. It helps you understand your diagnosis, learn about treatment options, and walk into your next neurology appointment better prepared.
What is CIDP?
CIDP is a rare autoimmune disorder in which the immune system attacks the myelin sheath protecting peripheral nerves, causing progressive weakness and sensory loss. It affects an estimated 1–9 people per 100,000. While CIDP has no cure, it is treatable — and with the right care, many patients achieve significant improvement or remission.
What can I ask?
- How CIDP is diagnosed and what the nerve conduction criteria mean
- How treatments work (IVIG, SCIg, Vyvgart Hytrulo, plasma exchange, corticosteroids)
- What questions to bring to your neurologist
- How to track your symptoms and document wearing-off
- How prior authorization works and how to appeal an insurance denial
- What clinical trials are currently enrolling
- Definitions of medical terms in plain language
How does the AI work?
The assistant uses a technique called Retrieval Augmented Generation (RAG). When you ask a question, it searches a curated knowledge base of CIDP-specific documents — including the 2021 EAN/PNS clinical practice guidelines, FDA drug approvals, GBS/CIDP Foundation resources, and clinical trial data — and uses Claude (Anthropic's AI) to answer based only on those sources. Every answer cites the documents it drew from so you can trace the information back to its source.
Our knowledge sources
- European Academy of Neurology / Peripheral Nerve Society — 2021 CIDP Guideline
- GBS|CIDP Foundation International — patient education resources
- US Food and Drug Administration — drug approval information
- Official drug prescribing information (IVIG products, Vyvgart Hytrulo, Hizentra, Cuvitru)
- ClinicalTrials.gov — active CIDP trial summaries
- Immune Deficiency Foundation — insurance and prior authorization guidance
Who built this?
This tool was built by a developer passionate about making complex medical information accessible to patients. CIDP is a rare disease with a significant information gap between what clinicians know and what patients can readily find. This tool is an attempt to close some of that gap.
If you have feedback, questions, or suggestions, you can reach us at roland.ruth@gmail.com
Additional resources
- GBS|CIDP Foundation International — free health navigator at 1-866-224-3301
- ClinicalTrials.gov — search recruiting CIDP trials
- Immune Deficiency Foundation — insurance and access resources